Prime Minister Dances for Duchenne Awareness Skip to content

Prime Minister Dances for Duchenne Awareness

By Larissa Kyzer

Prime Minister Katrín Jakobsdóttir got her groove on for a good cause on Friday when she took part in the ‘Dancing for Duchenne’ awareness-raising challenge this Friday.

Hulda Björk Svansdóttir, an Icelandic woman who is mother to a son with the disease, started the weekly challenge as part of her ‘Hope with Hulda’ project, which aims to share a little joy while also educating people about this severe form of muscular dystrophy.

Katrín danced to “Double Trouble,” from the recent (and locally beloved) Will Ferrell movie Eurovision: The Story of Fire Saga.

Hulda and her son Ægir Þór have previously danced with family members, the Reykjavík city council, doctors, and even Ægir Þór’s whole school. Post-COVID, they’ve kept the fun going with weekly Zoom dance sessions and have danced with people from all different places and walks of life: a family based in Canada, Icelandic children’s book author Ævar vísindamaður (Ævar the Scientist), and friends in Reykjavík. They even danced during a camping trip on Iceland’s National Day, June 17.

Katrín shared the video on her Facebook page, writing, “To my mind, Ægir Þór and other children who struggle with difficult and incurable diseases are our role models. They learn early on that things that are all too normal for kids around them are a lot harder for them. Taking even a few steps is very difficult, and they have less stamina. But children like Ægir Þór show us that they do not let diseases and the related challenges stand in their way. Fearlessness, perseverance, and joy are what stayed with me after my chat with Hulda and Ægir Þór today.”

Watch the Prime Minister’s full dance here.

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